I would be remiss if I didn't thank Julian's mom for sharing this NYTimes article.
A Place to Turn When a Newborn Is Fated to Die
A website about perinatal hospice with a directory of perinatal hospices.
I would also like to share this newsletter with you. Print it...share it with healthcare professionals you think might need it. I plan to share it with the hospitals and doctors I have dealt with.
(Warning: If you blindly look up "perinatal hospice" online, you will find a multitude of websites that talk about the sanctity of life and biblical ethics. I will reserve comment on this type of website. But I thought it only fair to warn my readers in case any of them are in a sensitive place in their own grief.)
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I saw that article too, and as a woman who has had a trisomy 18 baby and terminated instead of attempting hospice, I think this was done very well.
If I see one more story about "miracle babies" and the attempts to save them, and "gee it didn't work", I just don't know what I'll do. Some babies are fatally ill, and nothing can be done to save them, and this hospice program is really really the kindest option for anyone who couldn't terminate a pregnancy.
Thank you for those links, I'm going to send them on to someone today.
XX
Catherine,
Thank you for sharing these sites. A friend sent me an e-mail yesterday about the Mary Madeline Project - here is the website www.MaryMadelineProject.org. A high school girl I know is doing this (gathering dresses and cutting and sewing these) here in our town.
Renae
I've got the Mary Madeline Project on my great big list of links over there on my sidebar. :o)
Thanks for sharing this story, I thought it was well done.
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